I now live with Long COVID, postural orthostatic tachycardia syndrome (POTS) and post-exertional malaise (PEM), through a series of interventions I am able to work and have a much-improved quality of life.
Symptom Management and Symptom Support clinic:
As an experienced NMC registered nurse, I have already worked in a variety of specialist roles:
Julie Taylor is a highly experienced NMC-registered nurse with a diverse clinical background across NHS services, including neurology and bladder and bowel health. She also holds qualifications in Adult and children’s counselling, neurolinguistics and life coaching, supporting patients holistically across the emotional and physical dimensions of health.
After contracting COVID-19 in 2020, Julie developed Long COVID and associated syndromes such as POTS and PEM. Her personal recovery journey significantly shaped her professional path. Today, she combines clinical expertise with lived experience to support hundreds of patients in their own recoveries.
In early March 2020, I was deployed into a frontline nursing role as the first wave of COVID-19 surged across the UK. By May, I became unwell with acute COVID-19, and my life changed in ways I could never have imagined.
What followed was a long and challenging journey with Long COVID. I developed postural orthostatic tachycardia syndrome (POTS), post-exertional malaise (PEM), and a host of other symptoms. Like so many others, I found myself navigating a world of uncertainty, unanswered questions, and complex health challenges.
But through trial, research, advocacy, and the support of community, I gradually found my path toward recovery. I leaned into every available intervention, rest, pacing, nutrition, rehabilitation and day by day, I began to reclaim my life.
That experience didn’t just change me personally; it reshaped my professional purpose.
For me, Long COVID isn’t just a diagnosis, it’s a shared experience that calls for connection, compassion, and hope.
But my lived experience with Long COVID gave me a new lens and a renewed drive to support others in a more meaningful way.
Now, I work with patients across the UK who are also living with Long COVID. I support them in navigating symptoms like POTS, fatigue, digestive issues, bladder, bowel and pelvic floor health, cognitive dysfunction, and sleep disruption, with empathy, clinical knowledge, and genuine understanding.
Living with Long COVID
In February 2022, I launched the “Living with Long COVID” podcast as a way to support others and make sure no one felt alone in this journey. Since then, it’s reached over 40,000 listeners globally. I’ve had the privilege of interviewing leading clinicians, researchers, and patients, and I continue to learn from every single story. The podcast has reached a global audience, offering educational insights and emotional support through interviews with leading experts and individuals affected by Long COVID.
https://livingwithlongcovid.buzzsprout.com
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